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Monday, 12 December 2011

12th December - after oncology appointment

Well, things are worse than I thought.

If I don't have chemo, there will be a rapid decline in my health, and I will be dead in less than 4 months.
If I do have chemo, and it is working, I will have it for the rest of my life which could be as long as 1 year.

After 3 chemo cycles, I will have a scan.
If the tumours are getting smaller, we will continue.
If the remain the same size, we will have another discussion with the oncologist.
If there is no change, then the chemo will stop, my health will decline, and I will die.

There is a 20% chance the chemo will work.

I have to start taking various pain killers now, so that the pain will be more easily managed.

I have been advised to take early retirement based on the fact that it wont be long before I am unable to work.

My friend Claire used to work in pensions, so she is going to sort that for me...Thanks Claire!!!!

I need to go and see HR at work tomorrow.

Radiotherapy will be used on my back when the pain killers cease to work.
The radiotherapy cannot be used on my lung, liver or lymph nodes.

My G.P has given me a DS1500 form on the recommendation of my Oncologist.
This is a report for Disability Living Allowance, Attendance Allowance or Incapacity Benefit, this accompanies claim forms under the special rules..........
ie, incurable or terminal conditions.

I have a friend who is a benefit's advisor, and he will help me with the form filling.

I need to go to the hospital and have my 'bloods done' on 4th January, and Chemo on 5th.
I didn't want to start before then because I have the family over for the holidays, and I wanted to make sure that I would be well enough to enjoy the murder mystery weekend on 28th Jan.

I had better sort this spa break out on the 'hurry up' too.

Feeling all the negative things now like, shock, horror, fear I am off now.


Carole said...

Sometimes words are useless instead I'm sending you a huge gentle hug and much luv.
Speak soon hun xxXxx

Carol said...

Oh there you are!
I was getting a little worried about you!
Your huge gentle hug received with thanks!
Love and light,
Carol x x