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Wednesday, 13 June 2012

Good morning!

Based on what I said last time...I am feeling good, (or as good as it it going to get!)

Yesterday, me and Mum went shopping for some stuff for her new place. (Thank goodness that that is over, I was completely knackered!
We got home at 3, and I vegged out on the couch until bed time!



Today, I am out to lunch with a couple of friends.....far more civilised and gentile than yesterday!



I have managed to get the birthday pics, well, not me exactly, Roxanne put them on face book lol! Will I ever learn? Naw!



Well, here are a few pics of the birthday............













Oh, I know what I have been meaning to tell you all since Sunday morning!
I woke up, had a shower, and as I was washing my face...I thought,
"Ouch!"
Any way, when I got out of the shower, I had a peek in the mirror, and I had a bloody black eye!
Still got it....looks worse now than then...what's that all about!

Not quite like this, but good pic, don't ya think............





Have a good day, and see you all tomorrow....





Monday, 11 June 2012

Right, here I am with my 'second wind!!!!!!!'
Grrrrrrrrrr! Beware I am on the path of the wind!




Ok, slight exaggeration...I am trying to stand up in it!

Never the less, this is how it is..............

Pain.
Yes.
The slow release morphine make me very sick. The quick stuff, that I am taking anyway, make me sick if I use it more that 3 times in a 24 hour period, so I save that for night time to help me get a good night's sleep.

I still get pain in the day and the night...I can sleep from 22.00hrs - 02.00, 02.30 - 04.00,
04.30-06.00. Then I have to get up.
If I can, I go back to bed at 08.30-10.00.
(All the times are approximate.)



I have decided, that the way I feel is the best that I am going to feel, so waiting to feel better is like waiting for summer????? Will we get one? Who Knows?

SO, regardless how I feel, I am going to 'Suck it up', and get on with it!



Now then,
The pics from my birthday are ready and Jean, bless her, has managed to get the pic of me on the horse, so that should be up soon too.
(I was going to put the birthday pics up now, but I haven't named then, and they are coming up with silly numbers, so I have idea what is what and who is how..........
I can here you all saying,
'Nothing new there then'!
(How do you spell the sound of a raspberry being made!) ?Thhhhhhhrrrrrrrruuuuuppppptttttt?

Off now to see if I can identify these pics to give them to you tomorrow.

Today, I am off shopping with mum, for some new stuff that she wants for her new place, (again).
Tomorrow, out to lunch with Jean and Bill.
Thursday, Compton Hospice.
Friday, hopefully, meeting Mandy, who is going to 'do my service'.

Well, my petrol maybe getting a little scarce, but I will see if I can find some sugar, diesel, vegetable oil, electricity, wind power or anything that will take me just that bit further!!!!!!





Friday, 8 June 2012

Ok.....lets talk about these meds.

I hope that I have remembered this all correctly.
Let me first tell you that the nurses at Compton Hospice are really fantastic!


Right.........

It appears that I am having a reaction to 'slow release medication',(morphine).

Apparently, to make the morphine release slowly, some chemical alteration has to take place. It seems that it is this chemical 'messing' is what I am reacting to.

So, now I will continue with the meds that I am on and just take my oramorph as often as I feel the need to.

I have been feeling a bit nauseous on and off for a week or two....with or with out any new meds. Not sick....just feeling a bit queezy.

Well, starting yesterday, I have given myself an extra 4 doses of morphine. The 2 in the night, I have been taking for a while, so in all, I have just added 2 extra doses.

This morning, I have been very sick. My old faithful purple bucket, is again at my side.......

Based on the facts........ I could just be sick for no reason other that I am sick!!!!
Maybe nothing to do with the meds! Maybe nothing to do with cancer!?!
Could be that being sick is the next stage to my cancers? Who knows?!

You can be sure that me and the Lovely Hospice nurses will be trying to get to the bottom of it!



All right, all right! I will see if I can get a group photo of the staff and volunteers, but you have to admit that the above photo is not a bad substitute, and I know that you will enjoy it Troy!

I was quite tired yesterday at the Hospice, and I think that I spent a good lump of my time there asleep.....(the first time ever!!!!!!!)

We did discuss my tiredness. This is just part of cancer, and there is nothing that can be done about it.

I was given a great analogy....let's see if I can get this right..........

Well...........I can't remember verbatim what was said, so this is my interpretation........

I go at life like a 'pig at a potato'.........well, think of me as a car for a moment.......
a nice 2 seater convertible.......canary yellow, with a black roof, fabulous silver hubcaps, black leather interior, with wooden dash board.......Ahhhhhhhhhhh, sorry, got a bit carried away then.....



OK, I'm a car, driving every where.......(the lovely activities that I am going on etc), well, when it is over, I need rest, I need to 're-fuel'.
Well, with each re-fuelling, there is less and less fuel available, and at a pit stop some time in the future, my tank and the petrol pumps will be dry............At this point I will be sleeping more and 'doing' less.

Well, life goes on how ever you or I feel, so in about 1 hour, I will be off into town with Mum, to get some stuff that she needs for her move, and I will get some new under wear.

I have been invited out to a ballet on 19th June with Phil and Dawn, I am really looking forward to that.

I was suppose to be going out to lunch on 13th with Jean and another friend, but I may need to postpone that, because Robert has his annual review on that day in Bristol..........

Claire is coming on Sunday with Tilda, AND will have have the pics form her break in Venice.

Taking Mum to have her bloods done on Monday.

So, this little yellow sports car is having a short pit stop......filling up to complete today's pig and potato! LOL!





Wednesday, 6 June 2012

Wednesday 6th June 2012


Good morning, I have been up since 05:15.
it is a beautiful morning!
The birds are singing, sun trying to shine through, a little bit breezy, but a great morning!



To be honest, I haven't felt at my best Sunday to and including now. A bit lack lustre and generally tired.



I was actually sick this morning too.
This has come as a bit of a shock, because I haven't been taking the meds that made me feel nauseous on Friday.



Sleeping is still an issue, I have to lay on my left side or on my tummy. Any other position gives me enough pain to prevent sleep. I get similar pain during the day, but keeping still helps.
Of course, the negative to that is pins and needles in my bum and arm, and soreness where my bones meet surfaces.
But, then again, there are the same issues laying in the same position all night. I will get it all sorted tomorrow.



In fact, I am beginning to think that the sickness is just there, with or with out the meds!

Appetite.......................not too good.
Wight loss.....................Yep.
Inert..........................Yep.

I am sure that this is going to be short lived though, I'm not ready to slow down yet, my body may be.....but not ME!



I really have got to shake these feelings off, because I need to look through all of the cupboards and clean and pack Mum's stuff, and get the small stuff to Leicester.

I still have my canal trip, visit to my Brother,visit to North Yorkshire and a stay in London to take in a show or two! Oh, and make sure that Mum is properly moved. I have ordered here new change of address cards that we can send out.



My sister in law, Dawn, has entered 'Race for life' with a group of her friends. The group is called 'Carol's Girls', so if you feel able, perhaps you may like to sponsor them.



Carol's Girls
www.raceforlifesponsorme.org

Claire, who has been away in Venice for a few days, and sadly missed my birthday, has texted me every day, which is great. I should be seeing her later this week so she can tell me aaaaall about it!



Drumming lessons, these are still ongoing. My drumming tutor has been so understanding and patient. He is a very caring man, and a very good tutor! It's his birthday on 10th, so he is away in Torquay for a few days. Hopefully, I will be up and running on all cylinders by then!

Harvey Martin.........his details will be in my 'other places'......worth a look.PageNewbeat Enterprises-Professional Drum Tuition.
Drum Tutor · Wolverhampton
Pro drum tuition

Well, lets see how I feel later today, maybe I should just force myself to go out and DO something!!!


Tuesday, 5 June 2012

Good Morning!

I had a great birthday on Saturday.
I want to thank so many of you for leaving birthday messages on FB and for sending cards.



Well, I decided that I wouldn't continue to take the second lot of new meds. I wanted to be sure that I was well for our meal out at the Wing wah. Ready for anything!



I did have to take a couple of naps in the day, but I was pretty well for the evening.



Keith came on Friday evening.

A beautiful bouquet arrived on Saturday morning as a birthday gift from Sandra. Thanks.

Tom,Roxanne, Ann and Dave arrived at about 3.30 -4,30.
Dave, Jean, Richard and Jacky met at the Wing Wah at 6.00.

We all gathered ready for the evening.



We all ate, drank and chatted.



Suddenly, I was presented with a beautiful gift from Anita,(receptionist at the Wing Wah), and the rest of the staff, it was very touching, and I got all soft,tearful and very emotional.



After that, all returned to normal, Taro, (the manager), made us all ware weird and funny hats......in fact Keith looked like 'Speedy Gonzales', the little cartoon mouse when he looked down.



All the staff came and sang happy birthday, Taro on the 2 string guitar and me the the maracas! Lol!

A huge desert with sparklers came to the table, (accompanied), we got loads of spoons and we all tucked it!



I had balloons and ribbons from the wrapped present on my head and tied to other bits.



8.30 - 9.00....every one went home....me and Mum were really tired!



Thanks to every one for making today a great day!



There are loads of photos on every ones camera's , but alas, I need them to be sent to me before I can publish them here.

Let's hope that I can publish this now!

Friday, 1 June 2012

Friday 1st June 2012 - New meds.

The new meds.............


Well, I took my first last night.
When I awoke this morning, I felt a little sick, although I wasn't actually sick.
I also felt a little unwell, can't really put my finger on it, but I took myself to bed and slept for 3 or more hours.


When I came back down, again, I started to feel sick, and the feeling is getting stronger.
I haven't been sick, but I feel relatively sure that I will be before bed time!

The last lot of new meds were patches called 'Matrifen'.
The new meds, capsules, are called 'Zomorph'.
I am still taking 'Oramorph', but I think that the anti-sickness meds that I am on are controlling the sickness with that.

It's my birthday tomorrow and some of us are going out for a meal, so I hope that I feel well then!


I am not sure what to do.

Shall I stop the new meds until Sunday? I don't know.

I am as confused as these beautiful creatures!!!!


Keith will be coming either this evening or tomorrow morning, Roxanne and Tom will be here tomorrow, Ann and Dave will be coming tomorrow too. These are the people that have to do a bit of travelling....so looking forward to that.


Sadly, Claire wont be there......(well, sadly for me), she will be in Venice for the week end!
Have a great time!


Well, got to go now, I think that the loyal purple bucket has to come and keep me company!

Have a lovely week end!

Thursday, 31 May 2012

Thursday May 31st 2012


The girls came to pick me up at about 17.30. Leigh made me some cup cakes....yummy...Thanks.


Well, had a great time at the Wing Wah with Claire, Leigh and Faye. We were able to talk to each other, and certainly had some interesting conversations.
Thanks girls, it was a great evening.

I was back home at 20.15.
I had a little pain, and tried to hide it, but Claire sussed it.

Saying ooo, eee, oooo and ahhhh must have given it away.


Talking of which......
I was at Compton Hospice today and for the first time in years, I heard the song:-

I told the witch doctor I was in love with you
I told the witch doctor I was in love with you
And then the witch doctor, he told me what to do
He said that ....

(Chorus:)
Ooo eee, ooo ah ah ting tang
Walla walla, bing bang
Ooo eee, ooo ah ah ting tang
Walla walla, bing bang...
Ooo eee, ooo ah ah ting tang
Walla walla, bing bang
Ooo eee, ooo ah ah ting tang
Walla walla, bing bang

I told the witch doctor you didn't love me true
I told the witch doctor you didn't love me nice
And then the witch doctor, he gave me this advice
He said to ...

(Chorus:)
Ooo eee, ooo ah ah ting tang
Walla walla, bing bang
Ooo eee, ooo ah ah ting tang
Walla walla, bing bang...
Ooo eee, ooo ah ah ting tang
Walla walla, bing bang
Ooo eee, ooo ah ah ting tang
Walla walla, bing bang

Now, you've been keeping love from me
Just like you were a miser
And I'll admit I wasn't very smart
So I went out and found myself
A guy that's so much wiser
And he taught me the way to win your heart

My friend the witch doctor, he taught me what to say
My friend the witch doctor, he taught me what to do
I know that you'll be mine when I say this to you
Oh, Baby ....

(Chorus:)
Ooo eee, ooo ah ah ting tang
Walla walla, bing bang
Ooo eee, ooo ah ah ting tang
Walla walla, bing bang...
Ooo eee, ooo ah ah ting tang
Walla walla, bing bang
Ooo eee, ooo ah ah ting tang
Walla walla, bing bang

The chorus just reminded me of the noise I make when I am in pain! LOL!


Again, back to pain, it seems that I am having a negative reaction to the meds that I was prescribed last week.

I have new ones to start today, one every 12 hours.......let's see how I get on with that!

Let you know how I get on tomorrow, but for now, a coffee and a bit of T.V. I think!

Thursday 31st June - writing comp

Well, today I am at Compton Hospice and hopefully will get this pain and sickness mallarky sorted.



And this evening, I am dining out with friends at the Wing Wah.



As you may or may not know, I entered a writing competition a while ago, I haven't heard anything, so I assume that I am not a winner, so I thought that I would share it with you.

Their subject was death and dying....so don't have a go at me for being morbid!!!!!
Anyway, I don't think that it is morbid.

I have called it:-


I Know That I Am Dying - How Cool Is That?

It isn’t dying that is scary. The things that I find scary are how I am going to die, and the nearest and dearest that I will leave behind. What is killing me? A rare cancer, that no one seems to know much about.

The important thing for me is knowing that I have such a great team of McMillan nurses at Compton Hospice. They will ensure that my pain is controlled, and that I have a choice of where to die. That is one scary thing sorted already!

The other one is my loved ones. Well, knowing that I am dying has given me time to sort out a funeral. That is one thing less that they have to worry about.

Secondly, I have ensured that I have a will in place. I have spoken with all concerned and stated what is in my will. A list of who needs to be contacted and informed of my death is there ready for them.

A list of family members and friends who need to be contacted is there and in place. I don’t know about you, but there are some friends and family that I don’t keep contact with on a regular basis. Why? Probably because I am lazy, or meant to, and then forgot.

Knowing that I am dying has made me get on with this, no excuses. I have the opportunity to build bridges. I have fallen out with some people over the years, and now I know that I have to ‘fix’ it. (Or that I can if I want to).

I can spend as much time with my loved ones as is possible with no procrastinations. We are always visiting with each other, phoning, texting and emailing. Before we knew that I was dying, we didn’t make sure that we contacted each other so regularly. That is sad, but I am sure that many families are similar. Many of us need that kick in the ass to get our priorities straight.

How many of you have a ‘bucket list’? I didn’t have one. When I was told that I was going to be dead before the year was out, I started to think of all of the things that I wanted to do, the ones that I was either too busy or too skint to do! Well, in the last couple of months, I have done some of these things!

I promised myself a ‘Murder Mystery’ weekend, this was in 1982!!
Well, I went on one. I went with my Mum, my daughter and a friend. I have always wanted to go on a week end ‘Spa break’. Well, I did that too! Many friends and work colleagues bought me a day spa, which confirmed to me that I still wanted to have a fun week end at it. So that is what I did! My Mum, my daughter and two friends came with me.

Drama group……….I have always wanted to join a drama group, so I joined one last week! I intend to learn to play the drums too, something else that was just a day dream until I knew that I was dying!

There are so many things that I am able to do now, that I would have kept putting off. I want to rent a large house for a week, one that sleeps eighteen plus people. All my friends and family can stay for the week, or just pop in and out as their work allows. I want an indoor pool, a games room, close to local amenities………Oh what fun!
A fabulous gathering of family and friends! If I didn’t know that I was dying, this event would only be reserved for funerals and weddings. At my age, there are more funerals than weddings, so what a change, meeting to be happy!

I am going to have a week end away with my son and daughter; we are going to a ‘craft week end’. The three of us have always fancied a go at pottery. We have found a hotel that does this, and it also has a golf course. That means that my brother and sister in law will come too.

I go to a Day Centre once a week at the local Hospice. What fabulous opportunities there are there. I get to learn new skills, pursue any hobbies and past times that I have given up due to other pressures. I get to meet so many lovely people.

The Day Centre provides manicures, hair dressing and various holistic therapies. When would I have the time to have these? Well, I wouldn’t.
I can access physiotherapy, occupational therapy, benefits advice and so much more.

Many of the things that I have done and want to do, cost money. This is a fact.
Knowing that I am dying, means that I can have all of my pensions paid out in one go. (Work pensions). That certainly helps.

If I am still alive in August/September, I want to go to the Military Tattoo in Edinborough.

I have the time to make my garden into what I want it to be, I have time to sit in my garden and enjoy it.

When I knew that time was so short, I thought that if I didn’t live the rest of my life, and whoooop it up a bit, all of this valuable time would be lost.

I don’t have to watch my weight, I dress how I choose, I get to wear really fabulous head gear. No more daily hair washing, blow drying, moussing and waxing.
I have to paint my eye brows on, so I can put them where I like….no more mono brow, beautifully arched and exactly where I want them.

Knowing that I am dying is so liberating!

These are all the practical advantages…….Ethereal ones?
That is another new story.

Believe me when I say that the scariest thing about death is that you die before ‘living’, before saying ‘I’m sorry’, before forgiving yourself, and before saying ‘I love you’.


I Know That I Am Dying - How Cool Is That.

Carol Hubbard 2012.



I am feeling a bit queezy this morning, but I am sure that I will get over it by this evening......let's just hope that I am not 'over confident!'


Anyway, feel free to comment on my writing....I could always use tips and constructive criticism!

Have a great day!