OK, I am back. Thank you Roxanne and Derek for filling in on some of my worst days so far. I am still tired beyond my understanding, although, now that I have a basic explanation, I feel more at ease with it all.
Last week, a physiotherapist came to see me regarding my tiredness and lethargy. I have been so 'lack lustre' that I didn't even go to the Hospice.
I will explain how this effects my body at this time.
(I imagine that it would be the same with all who have cancer and other terminal diseases and other ailment).
This how it works.
Each day, there is an allocation of a certain amount of energy, lets call them 'zebs' for the sake of argument.
Anyway, I am given 5 zebs daily.
2 zebs Shower, brush teeth, dry, dress, make up, wipe shower
1 Zeb All the times that I climb up and down the stairs
daily to use the loo.
1 Zeb Picking drinks up, eating, standing to take meds,any
other standing. Being sick.
1 Zeb Hanging out a machine of washing.
That's it, all my zebs gone, I have to wait until tomorrow for any more.
I have to learn how to save zebs for the things that I want to.
Shower stool, no standing.
Don't dry, sit with towel or robe and self dry.
Have a shower the night before a specific event instead of the same morning.
Commode down stairs.
Sit, walk or lay.......never just stand, it takes up more energy.
Stop before you are tired.
Feel able to get about and push your own wheel chair as long as you sit before tiring.
Any thing that you do putting you hands above, like hanging washing, hair drying etc., uses many Zebs, The same as doing tasks that require bending down.
I have taken note of the recommendations and even started the ones that I can.
The McMillan Nurses came to see me too, but that is tomorrow's tale.